Trisha Crumpler’s son Maverick was born with MBD5, a rare genetic condition that causes developmental and learning delays. He also has microcephaly, a condition in which his head and brain are smaller compared to others.

Although he’s 3, he functions at the level of a 6-month-old.

Maverick recently transitioned into prekindergarten through the Newburgh Enlarged City School District, which approved him for several different in-home therapies.

But Crumpler says her son isn’t receiving all the care and support he was promised to receive.


What You Need To Know

  • Trisha Crumpler's 3-year-old son Maverick has MBD5, a rare genetic disorder that causes developmental and learning delays

  • Maverick is enrolled in prekindergarten at the Newburgh Enlarged City School District

  • Crumpler said the district agreed to provide several services for her son, but she says he still hasn't received speech therapy through the district 

"He’s received physical therapy, occupational therapy and a teacher, all in-home. He receives those services four times a week," said Crumpler. "And the one he didn’t receive is speech. That’s what we're fighting for now."

Crumpler says she’s gone back and forth with the Newburgh school district since October to get Maverick the speech therapist she said the district agreed to provide.

"These are the emails that I've sent to different members of the district, of the board of education, anybody that I could find on the Newburgh school district site to email," said Crumpler. "The responses I got were very disheartening. If I did get a response, it was only to pass the buck."

Crumpler said her son is non-communicative. That's why she said it's so crucial for Maverick to receive speech therapy.

"His communication is digressing. A big part of his MBD5 is digression. If he doesn’t do the same thing repetitiously over and over and over again, he will lose it," said Crumpler. "It's frustrating, it really is, especially when you have little people that can't speak for themselves, and it's unfair because everybody wants you to just take what you get."

Crumpler showed the Individual Education Program, or IEP, a plan for services she said she the school district agreed Maverick would need.

According to the document, Maverick would receive speech therapy from the district four times a week for 30 minutes at a time starting on Oct. 18.

Crumpler said so far, her son has missed more than 30 of those sessions.

In response to an inquiry, the Newburgh Enlarged City School District stated it could not comment on any individual child's needs.

Crumpler said she’ll continue to fight so her son can live as normal a life as possible.

"He has fought so hard to be the best him. I just want to fight to make sure he's going to get everything he needs," she said.

After an initial interview with Spectrum News 1, Crumpler said the school district reported that Maverick will be able to receive speech pathology services going forward with three different providers.

She said none of the sessions have taken place yet or been scheduled.