Dave Neufeglise was diagnosed with Amyotrophic Lateral Sclerosis (ALS), or Lou Gehrig’s disease, in January 2017. Since receiving the diagnosis, he has consciously chosen an aggressive approach.
He first became a patient at Massachusetts General Hospital in the hopes he would be chosen for the third phase of a clinical trial.
Neufeglise completed the trial. Knowing he was interested in any and all options, his doctors informed him of revolutionary treatment that was only available in South Korea.
The treatment uses a patient's own bone marrow to generate new cells and requires Neufeglise to travel to Seoul three times over the course of three months.
Neufeglise hopes his story can help further treatment options in the U.S.
"I've kind of let that previous reservation go. Now I'm using my voice for the time I have to let other people know that there's options out there and there's hope out there," said Neufeglise.
A GoFundMe has been set up to help with travel and treatment expenses.