BANGOR — Mainers and social media followers around the globe are rallying behind a Brewer family mourning the death of their 10-month-old baby, Elliana Rose Campbell, who died of a rare skin disease in April.

According to the National Institute of Arthritis and Musculoskeletal and Skin Diseases, Epidermolysis Bullosa (EB) causes severe blisters from the slightest touch and has no known cure.

Millions of people have been following Elliana’s story since her parents, Jacob and Hannah, first began posting about the family’s journey on the social media platform TikTok.

Now, a group called Elliana’s Army has formed in her honor to spread awareness about the disease.

Saturday, the group held a memorial walk in her name to raise funds for EB research.

“Epidermolysis Bullosa is also known as ‘the worst disease you’ve never heard of.' The unfortunate part of it being so rare is there aren’t a lot of voices who are screaming for it outside of the families who suffer from it,” said Alex Kenney, co-director of Elliana’s Army. “Elliana’s came together to act as a megaphone for these EB families’ causes, they have been fighting for so long to be heard.”

According to the Elliana's Army webpage on ebresearch.org the group has raised over $24,000 for EB research.

“We have put on this walk in an attempt to memorialize this sweet girl and her beautiful family and raise awareness for EB,” said Kenney. “I took that sadness, as well as the rest of Elliana’s army, and we turned it into a passion and a fire to end this disease.”

During the walk, Elliana’s parents said the community’s support means the world to them.

“This was something I started planning before Ellie passed away,” said Hannah Campbell. “But after losing her I just couldn’t carry it through on my own, so thank you guys. Your love and support mean the world.”

To donate, visit ebresearch.org or ellianasarmy.org.

Saturday's walk was organized by Elliana's Army with the EB Research Partnership. Kenney said proceeds from the event will go directly towards funding research.

“This is amazing what you guys have all done and the change that Ellie has brought to EB,” said Jacob Campbell. “And we couldn’t thank you guys enough. Thank you for helping us keep her memory alive.”