CHAUTAUQUA COUNTY, N.Y. -- Tara and Shane Swan, whose daughter Kallie lost her battle with leukemia three years ago this month at the age of three, said now is the time for the Childhood Cancer STAR Act. The legislation calls for $30 million over the next five years for programs and research specifically aimed at pediatric cancer. 

"Only four percent of all money raised for cancer research was used for child cancer, and that to me, that was shocking, so to have this bill, it means a lot," said Shane.

Tara and Shane founded Kallie's Krusade, which has financially helped countless organizations and close to 50 families whose children are battling cancer.

"Other people, they went out of their way to help us when Kallie was sick," Shane said.

"It's surprising, like the effect she still has on people," said Tara. "Of course, Shane and I think about her every day, and she's always with us."

Rep. Brian Higgins co-sponsored the bill, which has passed both houses of Congress and awaits President Trump's signature.

"This is all about innovation, it's all trial and error. Toward the goal of developing, much more effective treatments in childhood cancer," said Higgins, D-26th District.

The bill also requires the National Cancer Advisory board to have a pediatric oncologist at the table.

"That was surprising to me that, that hadn't occurred before because of so many kids dealing with cancer. However, now they have a voice and someone to actually advocate for them," said Tara.